Adult Congenital Heart Disease

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Black woman wearing a pink blouse and grey sweater sits in a sunlit kitchen
Black woman wearing a pink blouse and grey sweater sits in a sunlit kitchen

Lifelong care and support

In Michigan, about 50,000 adults are living with a congenital heart condition and the population continues to grow. Thanks to medical advances, people born with congenital heart defects are living longer, healthier lives.

Congenital heart disease is a lifelong condition, even with successful surgery or treatments. While a surgeon can repair the original heart defect, adults living with adult congenital heart disease (ACHD) may still experience long-term effects or complications even decades later.

Our team is on the leading edge of ACHD care. Our comprehensive services include early detection of complications, ongoing follow-up and support, and access to the most advanced treatment and research options.

Do I need an ACHD specialist?

If you were born with a congenital heart defect, a cardiologist who specializes in adult congenital heart disease should be part of your care team, even if you are not currently experiencing symptoms. This is recommended by the American Heart Association and the American College of Cardiology.

ACHD is not the same as heart disease that can develop later in life. It can cause different long-term complications, that often need specialized care.

Our ACHD specialists work closely with primary care, other cardiologists, pulmonologists, neurologists, kidney experts, and other specialists to identify emerging health problems as early as possible and provide appropriate, advanced care.

Why choose Corewell Health

National leaders in ACHD care

Our ACHD programs are led by physicians who are board-certified in ACHD care. Corewell Health is one of only two fully accredited ACHD Centers in Michigan as designated by the Adult Congenital Heart Disease Association. Our specialized teams deliver care that meets the highest national standards, offering advanced diagnostics, transcatheter and surgical treatments, as well as support services.

Patient-centered care

Our ACHD experts partner with specialists throughout Corewell Health and other health care organizations to provide individualized support to meet our patients’ needs, including behavioral health, pregnancy counseling, nutritional counseling, and more.

Conditions we treat

Our adult congenital heart disease specialists provide lifelong, ongoing care for teenagers and adults living with a wide variety of congenital heart problems, including:

Complex heart conditions

Conditions involving multiple heart defects, such as:

  • Single ventricle conditions, including hypoplastic left heart syndrome (HLHS) and tricuspid atresia
  • Transposition of the great arteries, including congenitally corrected transposition of the great arteries (CCTGA)
  • Tetralogy of Fallot

Heart wall openings

Abnormal openings or connections between the chambers of the heart, making it more difficult for the heart to send blood where it needs to go. Examples include:

  • Atrial septal defect (ASD)
  • Atrioventricular septal defect (AVSD) or AV canal
  • Patent foramen ovale (PFO)

  • Ventricular septal defect (VSD)

Valve defects

Conditions that prevent heart valves from functioning properly, causing problems with the healthy forward flow of blood. Examples include:

  • Aortic stenosis
  • Bicuspid aortic valve (BAV)
  • Congenital mitral valve problems
  • Ebstein’s anomaly

Vascular defects

Conditions in which major blood vessels entering or leaving the heart don’t work properly or are connected to the wrong location. Examples include:

  • Anomalous pulmonary venous return
  • Aorta defects such as aortic coarctation

Services we provide

Our ACHD specialists provide a range of services supporting the unique needs of adolescents and adults living with congenital heart disease, including:

Related services

Connect with an adult congenital heart disease specialist

Finding a specialist is the first step to treatment. No referral needed.